Authored by Karl Simpson
EURORDIS (European Organisation for Rare Diseases) has handed two prestigious accolades to two European companies at the very heart of rare diseases drug development.
Orphan Europe, based in Paris and part of the Recordati Group, was recognised with a Company Award for distinction in the field of rare diseases, an award which also distinguishes Orphan Europe’s work in engaging with the rare disease community in improving the diagnosis and management of rare disorders. The Company achieves this through work to establish scientific networks, engaging with patient organisations, as well as its staff volunteering programme.
EURORDIS Awards are presented to companies at the frontier of rare diseases treatments.
“We are honoured to receive this award in recognition for our work in rare diseases. At Orphan Europe we understand the devastating effect of many rare diseases and the urgent need for companies like ours to develop new innovative treatments”, said Corrado Castellucci, M.D. Vice President Orphan Drugs at Recordati, who accepted the award on behalf of Orphan Europe. “This award is a great thing for every person working at Orphan Europe, a company which places people with rare diseases at the heart of what they do”.
SOBI was awarded with the Company Award 2014 for its continued work in pioneering new treatment for rare diseases. “We are proud to be honoured by EURORDIS.” said Geoffrey McDonough, Chief Executive Officer, Sobi. “We are inspired to pioneer a world in which rare disease patients are diagnosed at birth, receive effective and sustainable therapy, and go on to live full and healthy lives. Collaboration with leading patients’ organizations such as EURORDIS is fundamental to this work.”
Dr. McDonough , an ex-Genzyme executive, has done an incredible job in leading Sobi since his appointment as CEO, bringing new leadership to the team and advancing a number of Sobi’s rare disease programmes.
Liftstream is an executive search and interim management recruitment company working exclusively within the global life science sector. Liftstream is proud to support rare disease day 2014.